On Social Security Disability for Lyme by a lady named Danielle
See, apparently the Social Security Administration, who often visits ActionLyme.org, knows more about Lyme than the charlatans of ILADS.org who want you to take out second and third mortgages until you are broke and can no long afford their malpractice treatments.
“Hi everyone, I’m not on here much but I have been on disability for 2 full years starting January 2014 for late stage Lyme. I spoke with disability two weeks ago regarding my review that is coming up. She was one of the politest I have talked to from the Social Security department. She reassured me that because lyme was my primary diagnosis I would most likely continue on disability since as far as they’re concerned Lyme disease has no cure. Those were her words exactly. I live in Pennsylvania and she said they will automatically do a review at three years, five years and seven years. As long as I am deemed unable to work by my physicians I will continue on disability. Obviously it is not my intent, after having a 23 year career in physical therapy and as an executive leader in a large hospital, not to return to work, but after battling this illness for years even before I was diagnosed I am physically unable to treat patients or perform my administrative duties as a director. I have late stage chronic Lyme, Bartonella and Babesia. These three diseases have turned my world upside down and I have lost everything, friends, family,even doctors that don’t believe me and think it’s psychiatric in nature. My children and my career were my life. My youngest daughter will graduate next year, I have twins who are 22 finishing college and one daughter who will be 17 in March. I was also told that if my disability continues the student loans that I have accrued for my daughters under parent plus loans will be in forbearance and/or wiped clean, because I have well, let’s just say thousands and thousands of dollars in student loans for my twins that I cannot afford now but could afford when I was working. Hell, I was even able to buy my own home after my divorce on my own salary and able to support all my girls and me. As it is just me and my daughters, I will lose the youngest daughters benefits when she graduates and will no longer be able to keep my home. That will be the nail that seals my coffin. And even though my twins have lived with me through everything, left college to come home to help take care of me and finish their degrees closer to home they were too old to meet the criteria for benefits. So I have struggled to take care of my daughters living at the poverty level when I once was making 6 figures. It is a very humbling experience and one that has changed me forever
The lady that I spoke to about my disability claim reassured me that I will still most likely be able to continue with my disability and if I am able to work even a couple hours a week, I Will retain my benefits. In Pennsylvania, I cannot make more then $1000 a month working outside the home to maintain my benefits. At this point in my life I can rarely get out of bed for more than A couple hours at a time and I have multiple migraines weekly and seizures and am unable to keep my weight at 100 lbs. I am on and off treatment continually and I have no quality-of-life. So in a nutshell to answer your question about Social Security disability, which of course depends on the state and Who reviewed your case and what doctors write letters and what the SSD requests, if you are deemed unable to work by your primary physician or your LLMD there should be no gap in coverage. Once again I stress this is only the information I got from the Social Security department regarding disability which I assume falls under federal guidelines. If anyone has any questions feel free to message me and I will gladly speak with you over the phone to give you more information. Best of luck to all of you and all my prayers so that we may all return to better health, a brighter future and a better quality of life. God bless to you all, Daniele”